The following guest post is by Linda Raftree. Linda works with Plan International USA, serves as a special advisor on ICTs and M&E for the Rockefeller Foundation’s Evaluation Office and is a member of the Open Knowledge Foundation Open Development Working Group.
A core theme that the Open Development track covered at September’s Open Knowledge Conference was Ethics and Risk in Open Development. There were more questions than answers in the discussions, summarized below, and the Open Development working group plans to further examine these issues over the coming year.
Informed consent and opting in or out
Ethics around ‘opt in’ and ‘opt out’ when working with people in communities with fewer resources, lower connectivity, and/or less of an understanding about privacy and data are tricky. Yet project implementers have a responsibility to work to the best of their ability to ensure that participants understand what will happen with their data in general, and what might happen if it is shared openly.
There are some concerns around how these decisions are currently being made and by whom. Can an NGO make the decision to share or open data from/about program participants? Is it OK for an NGO to share ‘beneficiary’ data with the private sector in return for funding to help make a program ‘sustainable’? What liabilities might donors or program implementers face in the future as these issues develop?
Issues related to private vs. public good need further discussion, and there is no one right answer because concepts and definitions of ‘private’ and ‘public’ data change according to context and geography.
Informed participation, informed risk-taking
The ‘do no harm’ principle is applicable in emergency and conflict situations, but is it realistic to apply it to activism? There is concern that organizations implementing programs that rely on newer ICTs and open data are not ensuring that activists have enough information to make an informed choice about their involvement. At the same time, assuming that activists don’t know enough to decide for themselves can come across as paternalistic.
As one participant at OKCon commented, “human rights and accountability work are about changing power relations. Those threatened by power shifts are likely to respond with violence and intimidation. If you are trying to avoid all harm, you will probably not have any impact.” There is also the concept of transformative change: “things get worse before they get better. How do you include that in your prediction of what risks may be involved? There also may be a perception gap in terms of what different people consider harm to be. Whose opinion counts and are we listening? Are the right people involved in the conversations about this?”
A key point is that whomever assumes the risk needs to be involved in assessing that potential risk and deciding what the actions should be — but people also need to be fully informed. With new tools coming into play all the time, can people be truly ‘informed’ and are outsiders who come in with new technologies doing a good enough job of facilitating discussions about possible implications and risk with those who will face the consequences? Are community members and activists themselves included in risk analysis, assumption testing, threat modeling and risk mitigation work? Is there a way to predict the likelihood of harm? For example, can we determine whether releasing ‘x’ data will likely lead to ‘y’ harm happening? How can participants, practitioners and program designers get better at identifying and mitigating risks?
When things get scary…
Even when risk analysis is conducted, it is impossible to predict or foresee every possible way that a program can go wrong during implementation. Then the question becomes what to do when you are in the middle of something that is putting people at risk or leading to extremely negative unintended consequences. Who can you call for help? What do you do when there is no mitigation possible and you need to pull the plug on an effort? Who decides that you’ve reached that point? This is not an issue that exclusively affects programs that use open data, but open data may create new risks with which practitioners, participants and activists have less experience, thus the need to examine it more closely.
Participants felt that there is not enough honest discussion on this aspect. There is a pop culture of ‘admitting failure’ but admitting harm is different because there is a higher sense of liability and distress. “When I’m really scared shitless about what is happening in a project, what do I do?” asked one participant at the OK Con discussion sessions. “When I realize that opening data up has generated a huge potential risk to people who are already vulnerable, where do I go for help?” We tend to share our “cute” failures, not our really dismal ones.
Academia has done some work around research ethics, informed consent, human subject research and use of Internal Review Boards (IRBs). What aspects of this can or should be applied to mobile data gathering, crowdsourcing, open data work and the like? What about when citizens are their own source of information and they voluntarily share data without a clear understanding of what happens to the data, or what the possible implications are?
Do we need to think about updating and modernizing the concept of IRBs? A major issue is that many people who are conducting these kinds of data collection and sharing activities using new ICTs are unaware of research ethics and IRBs and don’t consider what they are doing to be ‘research’. How can we broaden this discussion and engage those who may not be aware of the need to integrate informed consent, risk analysis and privacy awareness into their approaches?
The elephant in the room
Despite our good intentions to do better planning and risk management, one big problem is donors, according to some of the OK Con participants. Do donors require enough risk assessment and mitigation planning in their program proposal designs? Do they allow organizations enough time to develop a well-thought-out and participatory Theory of Change along with a rigorous risk assessment together with program participants? Are funding recipients required to report back on risks and how they played out? As one person put it, “talk about failure is currently more like a ‘cult of failure’ and there is no real learning from it. Systematically we have to report up the chain on money and results and all the good things happening. and no one up at the top really wants to know about the bad things. The most interesting learning doesn’t get back to the donors or permeate across practitioners. We never talk about all the work-arounds and backdoor negotiations that make development work happen. This is a serious systemic issue.”
Greater transparency can actually be a deterrent to talking about some of these complexities, because “the last thing donors want is more complexity as it raises difficult questions.”
Reporting upwards into government representatives in Parliament or Congress leads to continued aversion to any failures or ‘bad news’. Though funding recipients are urged to be innovative, they still need to hit numeric targets so that the international aid budget can be defended in government spaces. Thus, the message is mixed: “Make sure you are learning and recognizing failure, but please don’t put anything too serious in the final report.” There is awareness that rigid program planning doesn’t work and that we need to be adaptive, yet we are asked to “put it all into a log frame and make sure the government aid person can defend it to their superiors.”
Where to from here?
It was suggested that monitoring and evaluation (M&E) could be used as a tool for examining some of these issues, but M&E needs to be seen as a learning component, not only an accountability one. M&E needs to feed into the choices people are making along the way and linking it in well during program design may be one way to include a more adaptive and iterative approach. M&E should force practitioners to ask themselves the right questions as they design programs and as they assess them throughout implementation. Theory of Change might help, and an ethics-based approach could be introduced as well to raise these questions about risk and privacy and ensure that they are addressed from the start of an initiative.
Practitioners have also expressed the need for additional resources to help them predict and manage possible risk: case studies, a safe space for sharing concerns during implementation, people who can help when things go pear-shaped, a menu of methodologies, a set of principles or questions to ask during program design, or even an ICT4D Implementation Hotline or a forum for questions and discussion.
These ethical issues around privacy and risk are not exclusive to Open Development. Similar issues were raised last week at the Open Government Partnership Summit sessions on whistle blowing, privacy, and safeguarding civic space, especially in light of the Snowden case. They were also raised at last year’s Technology Salon on Participatory Mapping.
A number of groups are looking more deeply into this area, including the Capture the Ocean Project, The Engine Room, IDRC’s research network, The Open Technology Institute, Privacy International, GSMA, those working on “Big Data,” those in the Internet of Things space, and others.
I’m looking forward to further discussion with the Open Development working group on all of this in the coming months, and will also be putting a little time into mapping out existing initiatives and identifying gaps when it comes to these cross-cutting ethics, power, privacy and risk issues in open development and other ICT-enabled data-heavy initiatives.
Please do share information, projects, research, opinion pieces and more if you have them!